In 1999 I was awarded a Winston Churchill Scholarship to study the residential options available in USA and UK. At the end of this, I wrote my report. You can see it here.
It is now 2024 and things have changed. A lot. In the 1980s much was done to investigate to give the best possible lifestyle to people with mental impairment, various syndromes, and a lot of too-hard-to-handle designates who were living in huge mental hospital type accommodation. So with the breakdown of large institutions came an upsurge of smaller residential options. Some good, some not so good. And very few catered for those with PWS. You see, putting people with PWS into a group home (no more than 5 residents) meant putting rules and regulations around security of food, security of personal items, security of money etc was now impinging against the other 4 residents. And, in spite of all the good intentions and all the changes in funding, separating people with PWS into mixed residences was failing. And so is the case with my daughter.
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